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Patient organizations and patient partners play a key role in the Quebec research ecosystem.
They allow provincial and international companies to put patients at the forefront of their procedures, while optimizing their R&D, market access and treatment adherence efforts.
The patient organizations also publish the treatment guidelines currently in use in Quebec.
Access the Directory of Patient Organizations and treatment guidelinesRole of Partner Patient Partner Organizations
Contribute to a better understanding of patients’ needs
By formulating recommendations to adapt therapeutic solutions to their expectations.
Help optimize clinical trials
By proposing more suitable protocols, which favours participant recruitment and retention.
Facilitate market access
By supporting steps taken with authorities to accelerate the recognition of unmet needs and treatment assessment.
Improve treatment adherence
Through educational programs and practical tools that help improve patients’ use of treatments.
Reinforce trust by working with companies
Thus demonstrating the latter’s commitment toward patients and improving their reputation
Participate in the joint creation of innovative solutions
By jointly developing digital or support services to improve care pathways.
The Unité de soutien au système de santé apprenant (SSA) (Learning Health System Support Unit) also offers support if you wish to consult a panel of patient partners, a circle of Indigenous patient partners, or experts in equity, diversity, and inclusion. To learn more, visit their website.